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Naslov:Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention : insights gained from the ACTION trial
Avtorji:ID Zwakman, Marieke (Avtor)
ID Delden, Johannes JM van (Avtor)
ID Caswell, Glenys (Avtor)
ID Deliens, Luc (Avtor)
ID Ingravallo, F. (Avtor)
ID Jabbarian, Lea J. (Avtor)
ID Johnsen, Anna Thit (Avtor)
ID Korfage, Ida Joanna (Avtor)
ID Mimič, Alenka, Klinika Golnik (Avtor)
ID Møller Arnfeldt, C. (Avtor)
ID Lunder, Urška, Klinika Golnik (Avtor)
ID Červ, Branka, Klinika Golnik (Avtor)
ID Simonič, Anja, Klinika Golnik (Avtor)
ID Kodba Čeh, Hana, Klinika Golnik (Avtor)
ID Ozbič, Polona, Klinika Golnik (Avtor)
Datoteke:.pdf PDF - Predstavitvena datoteka, prenos (351,21 KB)
MD5: 444A5E67B112FAC0B572DDFA9D3F1A1C
 
.zip ZIP - Priloga, prenos (1,80 MB)
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URL URL - Izvorni URL, za dostop obiščite https://link.springer.com/content/pdf/10.1007/s00520-019-04956-1.pdf
 
Jezik:Angleški jezik
Tipologija:1.01 - Izvirni znanstveni članek
Organizacija:Logo UKPBAG - Univerzitetna klinika za pljučne bolezni in alergijo Golnik
Povzetek:Purpose. Writing an Advance Directive (AD) is often seen as a part of Advance Care Planning (ACP). ADs may include specific preferences regarding future care and treatment and information that provides a context for healthcare professionals and relatives in case they have to make decisions for the patient. The aim of this study was to get insight into the content of ADs as completed by patients with advanced cancer who participated in ACP conversations. Methods. A mixed methods study involving content analysis and descriptive statistics was used to describe the content of completed My Preferences forms, an AD used in the intervention arm of the ACTION trial, testing the effectiveness of the ACTION Respecting Choices ACP intervention. Results. In total, 33% of 442 patients who received the ACTION RC ACP intervention completed a My Preferences form. Document completion varied per country: 10.4% (United Kingdom), 20.6% (Denmark), 29.2% (Belgium), 41.7% (the Netherlands), 61.3% (Italy) and 63.9% (Slovenia). Content analysis showed that 'maintaining normal life' and 'experiencing meaningful relationships' were important for patients to live well. Fears and worries mainly concerned disease progression, pain or becoming dependent. Patients hoped for prolongation of life and to be looked after by healthcare professionals. Most patients preferred to be resuscitated and 44% of the patients expressed maximizing comfort as their goal of future care. Most patients preferred 'home' as final place of care. Conclusions. My Preferences forms provide some insights into patients' perspectives and preferences. However, understanding the reasoning behind preferences requires conversations with patients.
Ključne besede:advance care planning, psycho-oncology, medical oncology, ACTION study, cancer, end of life, dying persons
Leto izida:2019
Status objave pri reviji:Objavljeno
Verzija članka:Založnikova različica članka
Založnik:Springer Nature
Št. strani:str. 1513-1522
Številčenje:Vol. 28, iss. 3
Izvor:Nemčija
UDK:616-097
ISSN pri članku:1433-7339
DOI:10.1007/s00520-019-04956-1 Novo okno
COBISS.SI-ID:51449091 Novo okno
Avtorske pravice:(c) The Author(s) 2019
Opomba:Nasl. z nasl. zaslona; Soavtorice iz Slovenije: A. Mimić, U. Lunder, B. Červ, A. Simonič, H. Kodba Čeh, P. Ozbič; Opis vira z dne 12. 2. 2021;
Datum objave v DiRROS:15.02.2021
Število ogledov:764
Število prenosov:438
Metapodatki:XML RDF-CHPDL DC-XML DC-RDF
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Gradivo je del revije

Naslov:Supportive care in cancer
Skrajšan naslov:Support. care cancer
Založnik:Springer
ISSN:1433-7339
COBISS.SI-ID:513740569 Novo okno

Licence

Licenca:CC BY 4.0, Creative Commons Priznanje avtorstva 4.0 Mednarodna
Povezava:http://creativecommons.org/licenses/by/4.0/deed.sl
Opis:To je standardna licenca Creative Commons, ki daje uporabnikom največ možnosti za nadaljnjo uporabo dela, pri čemer morajo navesti avtorja.
Začetek licenciranja:05.09.2019

Sekundarni jezik

Jezik:Ni določen
Ključne besede:vnaprejšnje načrtovanje oskrbe, psihoonkologija, medicinska onkologija, raziskava ACTION, rak, zadnji dnevi življenja, umirajoči


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