20.500.12556/DiRROS-13712 Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention : insights gained from the ACTION trial Purpose. Writing an Advance Directive (AD) is often seen as a part of Advance Care Planning (ACP). ADs may include specific preferences regarding future care and treatment and information that provides a context for healthcare professionals and relatives in case they have to make decisions for the patient. The aim of this study was to get insight into the content of ADs as completed by patients with advanced cancer who participated in ACP conversations. Methods. A mixed methods study involving content analysis and descriptive statistics was used to describe the content of completed My Preferences forms, an AD used in the intervention arm of the ACTION trial, testing the effectiveness of the ACTION Respecting Choices ACP intervention. Results. In total, 33% of 442 patients who received the ACTION RC ACP intervention completed a My Preferences form. Document completion varied per country: 10.4% (United Kingdom), 20.6% (Denmark), 29.2% (Belgium), 41.7% (the Netherlands), 61.3% (Italy) and 63.9% (Slovenia). Content analysis showed that 'maintaining normal life' and 'experiencing meaningful relationships' were important for patients to live well. Fears and worries mainly concerned disease progression, pain or becoming dependent. Patients hoped for prolongation of life and to be looked after by healthcare professionals. Most patients preferred to be resuscitated and 44% of the patients expressed maximizing comfort as their goal of future care. Most patients preferred 'home' as final place of care. Conclusions. My Preferences forms provide some insights into patients' perspectives and preferences. However, understanding the reasoning behind preferences requires conversations with patients. advance care planning psycho-oncology medical oncology ACTION study cancer end of life dying persons vnaprejšnje načrtovanje oskrbe psihoonkologija medicinska onkologija raziskava ACTION rak zadnji dnevi življenja umirajoči true false true Springer Nature Angleški jezik Ni določen (c) The Author(s) 2019 Neznano 2021-02-15 10:45:48 2021-02-15 10:45:49 2022-08-19 03:36:14 0000-00-00 00:00:00 2019 0 Nemčija 0 Nasl. z nasl. zaslona; Soavtorice iz Slovenije: A. Mimić, U. Lunder, B. Červ, A. Simonič, H. Kodba Čeh, P. Ozbič; Opis vira z dne 12. 2. 2021; str. 1513-1522 iss. 3 Vol. 28 Mar. 2020 0000-00-00 Zaloznikova Objavljeno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616-097 1433-7339 10.1007/s00520-019-04956-1 51449091 513740569 RAZ_Zwakman_Marieke_i2019.pdf RAZ_Zwakman_Marieke_i2019.pdf 1 444A5E67B112FAC0B572DDFA9D3F1A1C f8d3ad5cf48fa83466bfc0ae86830435c557e2a5c9d6aeef4730fefcf90f6c13 83d3f256-17b6-11ed-b6b8-001a4af901a5 https://dirros.openscience.si/Dokument.php?lang=slv&id=17140 RAZ_Zwakman_Marieke_i2019.zip RAZ_Zwakman_Marieke_i2019.zip 1 7B39A0E326E31DFC1376A6D902329931 3f20c858bbacdf2bc0cd5f4a0f6d4668df96a0b9f8b7b32ec28d27d9ef2fc7cb 83e70d9a-17b6-11ed-b6b8-001a4af901a5 https://dirros.openscience.si/Dokument.php?lang=slv&id=17141 https://link.springer.com/content/pdf/10.1007/s00520-019-04956-1.pdf 1 https://dirros.openscience.si/Dokument.php?lang=slv&id=16753 Univerzitetna klinika za pljučne bolezni in alergijo Golnik 0 0 0