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Title:Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention : insights gained from the ACTION trial
Authors:ID Zwakman, Marieke (Author)
ID Delden, Johannes JM van (Author)
ID Caswell, Glenys (Author)
ID Deliens, Luc (Author)
ID Ingravallo, F. (Author)
ID Jabbarian, Lea J. (Author)
ID Johnsen, Anna Thit (Author)
ID Korfage, Ida Joanna (Author)
ID Mimič, Alenka, Klinika Golnik (Author)
ID Møller Arnfeldt, C. (Author)
ID Lunder, Urška, Klinika Golnik (Author)
ID Červ, Branka, Klinika Golnik (Author)
ID Simonič, Anja, Klinika Golnik (Author)
ID Kodba Čeh, Hana, Klinika Golnik (Author)
ID Ozbič, Polona, Klinika Golnik (Author)
Files:.pdf PDF - Presentation file, download (351,21 KB)
MD5: 444A5E67B112FAC0B572DDFA9D3F1A1C
 
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URL URL - Source URL, visit https://link.springer.com/content/pdf/10.1007/s00520-019-04956-1.pdf
 
Language:English
Typology:1.01 - Original Scientific Article
Organization:Logo UKPBAG - University Clinic of Respiratory and Allergic Diseases Golnik
Abstract:Purpose. Writing an Advance Directive (AD) is often seen as a part of Advance Care Planning (ACP). ADs may include specific preferences regarding future care and treatment and information that provides a context for healthcare professionals and relatives in case they have to make decisions for the patient. The aim of this study was to get insight into the content of ADs as completed by patients with advanced cancer who participated in ACP conversations. Methods. A mixed methods study involving content analysis and descriptive statistics was used to describe the content of completed My Preferences forms, an AD used in the intervention arm of the ACTION trial, testing the effectiveness of the ACTION Respecting Choices ACP intervention. Results. In total, 33% of 442 patients who received the ACTION RC ACP intervention completed a My Preferences form. Document completion varied per country: 10.4% (United Kingdom), 20.6% (Denmark), 29.2% (Belgium), 41.7% (the Netherlands), 61.3% (Italy) and 63.9% (Slovenia). Content analysis showed that 'maintaining normal life' and 'experiencing meaningful relationships' were important for patients to live well. Fears and worries mainly concerned disease progression, pain or becoming dependent. Patients hoped for prolongation of life and to be looked after by healthcare professionals. Most patients preferred to be resuscitated and 44% of the patients expressed maximizing comfort as their goal of future care. Most patients preferred 'home' as final place of care. Conclusions. My Preferences forms provide some insights into patients' perspectives and preferences. However, understanding the reasoning behind preferences requires conversations with patients.
Keywords:advance care planning, psycho-oncology, medical oncology, ACTION study, cancer, end of life, dying persons
Publication status:Published
Publication version:Version of Record
Place of publishing:Nemčija
Publisher:Springer Nature
Year of publishing:2019
Number of pages:str. 1513-1522
Numbering:Vol. 28, iss. 3
PID:20.500.12556/DiRROS-13712 New window
UDC:616-097
ISSN on article:1433-7339
DOI:10.1007/s00520-019-04956-1 New window
COBISS.SI-ID:51449091 New window
Copyright:(c) The Author(s) 2019
Note:Nasl. z nasl. zaslona; Soavtorice iz Slovenije: A. Mimić, U. Lunder, B. Červ, A. Simonič, H. Kodba Čeh, P. Ozbič; Opis vira z dne 12. 2. 2021;
Publication date in DiRROS:15.02.2021
Views:1261
Downloads:875
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Record is a part of a journal

Title:Supportive care in cancer
Shortened title:Support. care cancer
Publisher:Springer
ISSN:1433-7339
COBISS.SI-ID:513740569 New window

Licences

License:CC BY 4.0, Creative Commons Attribution 4.0 International
Link:http://creativecommons.org/licenses/by/4.0/
Description:This is the standard Creative Commons license that gives others maximum freedom to do what they want with the work as long as they credit the author.
Licensing start date:05.09.2019

Secondary language

Language:Undetermined
Keywords:vnaprejšnje načrtovanje oskrbe, psihoonkologija, medicinska onkologija, raziskava ACTION, rak, zadnji dnevi življenja, umirajoči


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