Digitalni repozitorij raziskovalnih organizacij Slovenije

Izpis gradiva
A+ | A- | SLO | ENG

Naslov:Development of an international Core Outcome Set (COS) for best care for the dying person : study protocol
Avtorji:Zambrano, Sofia C. (Avtor)
Haugen, Dagny Renata Faksvåg (Avtor)
Heide, Agnes van der (Avtor)
Tripodoro, Vilma A. (Avtor)
Ellershaw, John (Avtor)
Fürst, Carl-Johan (Avtor)
Voltz, Raymond (Avtor)
Mason, Stephen (Avtor)
Daud, María L. (Avtor)
De Simone, Gustavo (Avtor)
Lunder, Urška (Avtor)
Kodba Čeh, Hana (Avtor)
Bakan, Miša (Avtor)
Jezik:Angleški jezik
Tipologija:1.01 - Izvirni znanstveni članek
Organizacija:Logo UKPBAG - Univerzitetna klinika za pljučne bolezni in alergijo Golnik
Povzetek:Background: In contrast to typical measures employed to assess outcomes in healthcare such as mortality or recovery rates, it is difficult to define which specific outcomes of care are the most important in caring for dying individuals. Despite a variety of tools employed to assess different dimensions of palliative care, there is no consensus on a set of core outcomes to be measured in the last days of life. In order to optimise decision making in clinical practice and comparability of interventional studies, we aim to identify and propose a set of core outcomes for the care of the dying person. Methods: Following the COMET initiative approach, the proposed study will proceed through four stages to develop a set of core outcomes: In stage 1, a systematic review of the literature will identify outcomes measured in existing peer reviewed literature, as well as outcomes derived through qualitative studies. Grey literature, will also be included. Stage 2 will allow for the identification and determination of patient and proxy defined outcomes of care at the end of life via quantitative and qualitative methods at an international level. In stage 3, from a list of salient outcomes identified through stages 1 and 2, international experts, family members, patients, and patient advocates will be asked to score the importance of the preselected outcomes through a Delphi process. Stage 4 consists of a face-to-face consensus meeting of international experts and patient/family representatives in order to define, endorse, and propose the final Core Outcomes Set. Discussion: Core Outcome Sets aim at promoting uniform assessment of care outcomes in clinical practice as well as research. If consistently employed, a robust set of core outcomes for the end of life, and specifically for the dying phase, defined by relevant stakeholders, can ultimately be translated into best care for the dying person. Patient care will be improved by allowing clinicians to choose effective and meaningful treatments, and research impact will be improved by employing internationally agreed clinically relevant endpoints and enabling accurate comparison between studies in systematic reviews and/or in meta-analyses.
Ključne besede:palliative care, palliative medicine, Delphi technique, dying persons, Outcome research, last days of life, end of life
Leto izida:2020
Založnik:Springer Nature
Izvor:Velika Britanija
UDK:616
ISSN pri članku:1472-684X
OceCobissID:2444308 Povezava se odpre v novem oknu
COBISS_ID:48518915 Povezava se odpre v novem oknu
DOI:10.1186/s12904-020-00654-6 Povezava se odpre v novem oknu
Opombe:Nasl. z nasl. zaslona; Soavtorice iz Slovenije: U. Lunder, H. Kodba-Čeh, M. Bakan; Opis vira z dne 25. 1 2021; Št. članka: 184;
Število ogledov:665
Število prenosov:328
Datoteke:.pdf PDF - Predstavitvena datoteka, prenos (792,31 KB)
URL URL - Izvorni URL, za dostop obiščite https://bmcpalliatcare.biomedcentral.com/track/pdf/10.1186/s12904-020-00654-6.pdf
 
Nadgradivo:BMC Palliat Care
BioMed Central
 
Metapodatki:XML RDF-CHPDL DC-XML DC-RDF
Avtorske pravice:© The Author(s). 2020
:
  
Postavite miškin kazalec na naslov za izpis povzetka. Klik na naslov izpiše podrobnosti ali sproži prenos.


Licence

Licenca:CC BY 4.0, Creative Commons Priznanje avtorstva 4.0 Mednarodna
Povezava:http://creativecommons.org/licenses/by/4.0/deed.sl
Opis:To je standardna licenca Creative Commons, ki daje uporabnikom največ možnosti za nadaljnjo uporabo dela, pri čemer morajo navesti avtorja.
Začetek licenciranja:30.11.2020

Nazaj