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Naslov:Trained facilitators' experiences with structured advance care planning conversations in oncology : an international focus group study within the ACTION trial
Avtorji:ID Pollock, K. (Avtor)
ID Zwakman, Marieke (Avtor)
ID Bulli, Francesco (Avtor)
ID Caswell, Glenys (Avtor)
ID Červ, Branka, Klinika Golnik (Avtor)
ID Delden, Johannes JM van (Avtor)
ID Deliens, Luc (Avtor)
ID Heide, Agnes van der (Avtor)
ID Jabbarian, Lea J. (Avtor)
ID Kodba Čeh, Hana, Klinika Golnik (Avtor)
ID Lunder, Urška, Klinika Golnik (Avtor)
ID Mimič, Alenka, Klinika Golnik (Z enoto povezano ime)
ID Simonič, Anja, Klinika Golnik (Avtor)
ID Ozbič, Polona (Z enoto povezano ime)
ID Simonič, Anja (Sodelavec pri raziskavi)
ID Mimič, Alenka (Sodelavec pri raziskavi)
ID Ozbič, Polona (Sodelavec pri raziskavi)
Datoteke:.pdf PDF - Predstavitvena datoteka, prenos (748,78 KB)
MD5: B590EB1E04E075B7748B6B1BA791C38F
 
URL URL - Izvorni URL, za dostop obiščite https://bmccancer.biomedcentral.com/articles/10.1186/s12885-019-6170-7
 
Jezik:Angleški jezik
Tipologija:1.01 - Izvirni znanstveni članek
Organizacija:Logo UKPBAG - Univerzitetna klinika za pljučne bolezni in alergijo Golnik
Povzetek:Background: In oncology, health care professionals often experience conducting advance care planning (ACP) conversations as difficult and are hesitant to start them. A structured approach could help to overcome this. In the ACTION trial, a Phase III multi-center cluster-randomized clinical trial in six European countries (Belgium, Denmark, Italy, the Netherlands, Slovenia, United Kingdom), patients with advanced lung or colorectal cancer are invited to have one or two structured ACP conversations with a trained facilitator. It is unclear how trained facilitators experience conducting structured ACP conversations. This study aims to understand how facilitators experience delivering the ACTION Respecting Choices (RC) ACP conversation. Methods: A qualitative study involving focus groups with RC facilitators. Focus group interviews were recorded, transcribed, anonymized, translated into English, and thematically analysed, supported by NVivo 11. The international research team was involved in data analysis from initial coding and discussion towards final themes. Results: Seven focus groups were conducted, involving 28 of in total 39 trained facilitators, with different professional backgrounds from all participating countries. Alongside some cultural differences, six themes were identified. These reflect that most facilitators welcomed the opportunity to participate in the ACTION trial, seeing it as a means of learning new skills in an important area. The RC script was seen as supportive to ask questions, including those perceived as difficult to ask, but was also experienced as a barrier to a spontaneous conversation. Facilitators noticed that most patients were positive about their ACTION RC ACP conversation, which had prompted them to become aware of their wishes and to share these with others. The facilitators observed that it took patients substantial effort to have these conversations. In response, facilitators took responsibility for enabling patients to experience a conversation from which they could benefit. Facilitators emphasized the need for training, support and advanced communication skills to be able to work with the script. Conclusions: Facilitators experienced benefits and challenges in conducting scripted ACP conversations. They mentioned the importance of being skilled and experienced in carrying out ACP conversations in order to be able to explore the patients' preferences while staying attuned to patients' needs.
Ključne besede:ACTION study, cancer, facilitator, patients, respecting choices, experience
Leto izida:2019
Status objave pri reviji:Objavljeno
Verzija članka:Založnikova različica članka
Založnik:Springer Nature
Št. strani:str. 1-13
Številčenje:19
Izvor:Velika Britanija
PID:20.500.12556/DiRROS-12434 Novo okno
UDK:614.2
ISSN pri članku:1471-2407
DOI:10.1186/s12885-019-6170-7 Novo okno
COBISS.SI-ID:2048583793 Novo okno
Avtorske pravice:© The Author(s). 2019
Opomba:Nasl. z nasl. zaslona; Soavtorice iz Slovenije: B. Červ, H. Kodba-Čeh, U.Lunder, sodelavke pri raziskavi iz Slovenije: U. Lunder, B. Červ, A. Simonič, A. Mimić, H. Kodba Čeh, P. Ozbič; Opis vira z dne 29. 11. 2019; Št. članka: 1026;
Datum objave v DiRROS:23.09.2020
Število ogledov:885
Število prenosov:566
Metapodatki:XML RDF-CHPDL DC-XML DC-RDF
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Gradivo je del revije

Naslov:BMC cancer
Skrajšan naslov:BMC Cancer
Založnik:BioMed Central
ISSN:1471-2407
COBISS.SI-ID:2434324 Novo okno

Licence

Licenca:CC BY 4.0, Creative Commons Priznanje avtorstva 4.0 Mednarodna
Povezava:http://creativecommons.org/licenses/by/4.0/deed.sl
Opis:To je standardna licenca Creative Commons, ki daje uporabnikom največ možnosti za nadaljnjo uporabo dela, pri čemer morajo navesti avtorja.
Začetek licenciranja:20.09.2019

Sekundarni jezik

Jezik:Ni določen
Ključne besede:raziskava ACTION, rak, pomočnik pri načrtovanju oskrbe, bolniki, spoštovanje odločitev, izkušnje


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