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Iskalni niz: "ključne besede" (children) .

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The role of volunteers in supporting the psychosocial well-being of hospitalised children with cancer : a narrative review and recommendations for clinical practice
Ivana Kreft, Janez Jazbec, 2026, pregledni znanstveni članek

Povzetek: Children undergoing cancer treatment face repeated, prolonged hospitalisations carrying substantial risks of psychological distress, social isolation, and impaired development. Volunteers offering structured non-medical activities are widely employed to complement professional psychosocial care in paediatric oncology settings, yet empirical evidence examining their role specifically—as distinct from professionally delivered psychosocial interventions—remains sparse. This narrative review, conducted in accordance with SANRA criteria and drawing on a structured search of PubMed, PsycINFO, and Google Scholar (2000–2025), supplemented by a targeted verification search in July 2026, synthesises the theoretical and preliminary empirical basis for volunteer involvement, critically evaluates associated clinical risks, and proposes evidence-informed recommendations for paediatric oncology clinical practice. Three theoretical frameworks provide the conceptual grounding for volunteer activities: developmental psychological models (Piaget; Erikson), stress and coping theory (Lazarus and Folkman), and the biopsychosocial model (Engel). Indirect empirical evidence—derived predominantly from professionally delivered interventions—supports short-term benefits of structured distraction, play, and social activities on procedural anxiety, pain experience, and sense of social inclusion; the sole study examining volunteer-facilitated activities specifically in paediatric oncology reported meaningful reductions in distress and high family satisfaction. Eight categories of clinical risk are identified, including physical and psychological overload, erosion of child autonomy, suppression of authentic emotional expression, and inadequate coordination with healthcare staff. Six practice recommendations are proposed, centred on a working definition of the volunteer role, mandatory pre-access training, genuine individualisation including cultural adaptation, multidisciplinary-team-led coordination, and structured programme evaluation. Volunteer involvement can meaningfully complement professional psychosocial care when delivered within a structured, supervised, and multidisciplinary-team-coordinated framework. The paediatric oncology team occupies a pivotal role in realising the potential benefits while safeguarding children from associated risks. Prospective research employing standardised volunteer programme definitions and validated child-reported outcome measures is urgently needed to build an evidence base commensurate with the clinical importance of this practice.
Ključne besede: paediatric oncology, hospitalised children, volunteers, psychosocial support, cancer nursing, play interventions, distraction, clinical recommendations
Objavljeno v DiRROS: 06.08.2026; Ogledov: 23; Prenosov: 16
.pdf Celotno besedilo (204,05 KB)
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Better COVID-19 outcomes in children with good asthma control
Jasna Rodman, Malena Aldeco, Dušanka Lepej, Marina Praprotnik, Saša Šetina Šmid, Aleksandra Zver, Uroš Krivec, 2023, izvirni znanstveni članek

Ključne besede: asthma, asthma control, children, COVID-19, SARS-CoV-2
Objavljeno v DiRROS: 04.08.2026; Ogledov: 58; Prenosov: 32
.pdf Celotno besedilo (560,96 KB)
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Familial hypercholesterolaemia in children and adolescents : a European Atherosclerosis Society consensus statement
Albert Wiegman, Mafalda Bourbon, Tomas Freiberger, Samuel S. Gidding, Susanne Greber-Platzer, Urh Grošelj, Kirsten B. Holven, Lisa Cooper Hudgins, Steve E. Humphries, 2026, izvirni znanstveni članek

Povzetek: Familial hypercholesterolaemia (FH) is a common genetic disorder characterized by lifelong elevated LDL cholesterol (LDL-C) concentrations. FH exists in two forms: heterozygous FH (HeFH), which affects around 1 in 300 people worldwide, and homozygous FH (HoFH), which affects around 1 in 300 000. Individuals with FH are at increased risk of premature atherosclerotic cardiovascular disease (ASCVD) and death, and those with HoFH are, if untreated, at extreme risk of ASCVD manifestations even before adulthood. Early diagnosis and treatment in childhood can extend or normalize life expectancy, but limited awareness, underdiagnosis, and undertreatment remain major challenges. This consensus statement aims to address these challenges, supported by increased knowledge of the pathogenesis of FH and the availability of an increasing range of lipid-lowering therapies (LLTs) that can be used from early ages. To increase the detection rate of FH, all countries are encouraged to establish a paediatric screening programme and, given that current diagnostic criteria often fail to identify children with an FH-causing genetic variant, revised diagnostic criteria are presented. Updated LDL-C treatment goals are proposed, and the importance of starting LLTs before puberty in children with HeFH, and, if needed, from 6 years, is highlighted. Guidance on how to manage FH is provided, including treatment algorithms for use in children with either HeFH or HoFH and a discussion on how to promote a smooth transition to adult care. Early detection and optimal treatment as advocated in this consensus statement are crucial to improving life expectancy for children and adolescents with FH.
Ključne besede: familial hypercholesterolaemia, children, lipid-lowering therapy, cumulative lowdensity lipoprotein cholesterol exposure, cardiovascular risk, adolescents
Objavljeno v DiRROS: 27.07.2026; Ogledov: 122; Prenosov: 105
.pdf Celotno besedilo (1,65 MB)
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Two Congenial Female Voices – A World Apart
Saša Simović, Olga Vojičić-Komatina, 2022, izvirni znanstveni članek

Povzetek: The attempt to reconstruct the personality and the literary works of Margaret Fuller and Ivana Brlić-Mažuranić shines the spotlight not only on these extraordinary female figures, two strong female voices coming from two distant parts of the world, Margaret as a writer, Transcendentalist, translator, journal editor and contributor; Ivana as the authoress of short stories, poems, a short novel and collections of fairy-tales, but also from a period of time which represents a prolegomenon in the comprehension of female abilities. Both of these distinguished female figures earned significant reputation: Margaret was the first American female foreign correspondent, and Ivana received two nominations for the Nobel Prize for Literature. Both were ahead of their time and ‘’moved’’ the boundaries, both were dedicated to education and writing, and tried whole-heartedly to influence the improvement of the social position of women. The aim of this paper is to point out their vision of (women’s) writing / children’s literature as well as their contribution to education (of women) in general.
Ključne besede: female voice, antebellum America, South Slavic literary context, children’s literature
Objavljeno v DiRROS: 23.07.2026; Ogledov: 95; Prenosov: 67
.pdf Celotno besedilo (1,75 MB)
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Factors related to loss to follow‐up and low compliance in Helicobacter pylori‐infected children : the EuroPedHp Registry
Thu Giang Le Thi, Kallirroi Kotilea, José Cabral, Michal Kori, Maria Luz Cilleruelo, Marta Tavares, Josefa Barrio, Vaidotas Urbonas, Matjaž Homan, Zrinjka Mišak, Martina Klemenak, 2026, izvirni znanstveni članek

Povzetek: Objectives: Monitoring for Helicobacter pylori (H. pylori)‐eradication is important, since symptom improvement does not indicate treatment success. Using EuroPedHp Registry data, we investigated characteristics of children missing monitoring visits after prescribed therapy, compliance effect on eradication, and factors associated with loss to follow‐up and low compliance. Methods: Between 2017 and 2020, 30 paediatric hospitals from 17 European countries reported 1605 children with biopsy‐ proven H. pylori‐infection. Children with prescribed therapy were analysed. Risk factors for loss to follow‐up or low compliance (taking ≤90% of prescribed medications) were identified applying multivariable logistic regression. Results: Of 1263 infected children with prescribed therapy, 390 (31%) were lost to follow‐up. Risk factors for loss to follow‐ up included nausea/dyspepsia (p = 0.004) or gastrointestinal bleeding (p = 0.03) as indication for endoscopy, living in Israel or Türkiye (p = 0.0002), and having no antibiotic susceptibility result (p = 0.004). Risk decreased with living in Southern Europe (p = 0.002), migration background (p = 0.052), and probiotic use during therapy (p = 0.02). Low compliance, reported in 69/831 (8%) children with follow‐up data, was associated with vomiting (p = 0.003), peptic ulcers or erosions (p = 0.03), living in EasternEurope (p = 0.009), Israel or Türkiye (p = 0.0008), and any adverse event during therapy (p = 0.0009). First‐ line tailored triple therapy (TTT) for 14 days (N = 480) was successful in 92% with excellent versus 61% with low compliance (p < 0.0001). After ≥1 failed therapies (N = 60), TTT was successful in 71% with high versus 13% with low compliance (p = 0.003). Conclusion: The registry data identified several factors associated with non‐adherence to medication and monitoring visits. Improving information to patient/caregiver may increase adherence, care and treatment success.
Ključne besede: Helicobacter pylori, children, registry
Objavljeno v DiRROS: 20.07.2026; Ogledov: 159; Prenosov: 160
.pdf Celotno besedilo (2,09 MB)
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8.
Dyslipidemia and retinal microvascular health in children and adolescents : a systematic review
Krenar Xhafa, Urh Grošelj, 2026, izvirni znanstveni članek

Povzetek: Background/Objectives: Dyslipidemia is increasingly linked to retinal microvascular changes, yet its impact in pediatric populations remains unclear. Given the retina’s role as a microvascular model, this review evaluates the association between dyslipidemia and retinal vascular alterations in children and adolescents. Methods: We conducted a systematic review following the Preferred Reporting Items for Systematic Reviews and Meta-analysis (PRISMA) guidelines to evaluate the association between lipid profiles, body composition, and retinal vascular parameters in individuals younger than 19 years. Four eligible studies were found. Results: Triglyceride (TG) levels, total cholesterol (TC) levels, low-density lipoprotein cholesterol (LDL-C), and apolipoprotein B (apoB) levels were associated with smaller retinal arteriole diameters (CRAE), whereas there was no consistent association between venular diameter (CRVE) and lipid levels. In addition, families with familial hypercholesterolemia (FH) had lower capillary densities and larger foveal avascular zone areas detected by optical coherence tomography angiography (OCT-A) compared to control subjects. The presence of both obesity and dyslipidemia resulted in greater degrees of arteriolar narrowing. Conclusions: These findings suggest that adverse metabolic profiles in childhood may be linked to early microvascular alterations. However, the limited number of heterogeneous studies highlights the need for larger longitudinal investigations.
Ključne besede: body composition, dyslipidemia, retinal vessels, children, familial hypercholesterolemia, optical coherence tomography angiography
Objavljeno v DiRROS: 01.07.2026; Ogledov: 161; Prenosov: 128
.pdf Celotno besedilo (703,74 KB)
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Children With Intellectual Disabilities in Croatia : From Psychiatry to Specialized Institutions (1897–1970s)
Jelena Seferović, 2026, izvirni znanstveni članek

Povzetek: In the period between the late nineteenth century and the 1970s, the treatment of children with intellectual disabilities (ID) in Croatia was predominantly shaped by medical paradigms and biologically deterministic perspectives. Initial steps toward educational inclusion emerged in the 1930s with the establishment of special classes and the implementation of standardized testing, although many children continued to be excluded from formal education. In the postwar period, institutional models gradually adapted to demographic changes and evolving diagnostic practices, yet in the absence of coherent policy frameworks. The study underscores the fragmented interplay between medical, social, and educational sectors, emphasizing that sub-stantive reforms did not take shape until the early 1970s.
Ključne besede: history of disability, Croatia, children with intellectual disabilities, institutional care, medical model, special education
Objavljeno v DiRROS: 30.06.2026; Ogledov: 173; Prenosov: 126
.pdf Celotno besedilo (1,69 MB)
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Kawasaki-like illness following COVID-19 infection in a minor β-thalassemic girl
Giusto Trevisan, Serena Bergamo, Serena Bonin, 2025, drugi znanstveni članki

Povzetek: Multisystem inflammatory syndrome (MIS), also known as a Kawasaki-like illness, is a rare condition linked to severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). It presents with systemic inflammation and organ dysfunction, and it shares several clinical features with Kawasaki disease (KD). This case report describes an 8-year-old girl that developed symptoms suggestive of MIS or KD several weeks after a COVID-19 infection. She experienced a high fever lasting 4 days, followed by the appearance of itchy, erythematous patches on her legs, which later spread to her trunk and face. The inflammatory symptoms resolved spontaneously in less than 2 months without any lasting effects.
Ključne besede: multisystem inflammatory syndrome, Kawasaki-like illness, COVID-19, children, β-thalassemia
Objavljeno v DiRROS: 15.06.2026; Ogledov: 227; Prenosov: 193
.pdf Celotno besedilo (13,70 MB)
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