Show document

A+ | A- | | SLO | ENG

Title: Pravica do zdravljenja redkih bolezni v Sloveniji Authors: ID Mišič, Luka (Author) Files: PDF - Presentation file, download (163,76 KB) MD5: 3E7295FDCC1698CF2EAF0705A3E5B96D   Language: Slovenian Typology: 1.01 - Original Scientific Article Organization: IDPF - Institute for Labour Law at Ljubljana Faculty of Law Abstract: V začetku letošnjega leta je Državni zbor sprejel Zakon o Skladu za financiranje zdravljenja redkih bolezni (ZSFZRB), namenjen vzpostavitvi sistemskega in namenskega vira financiranja zdravljenja redkih bolezni, ki praviloma prizadenejo otroke. To naredi razpravo o pravici do zdravljenja redkih bolezni, pogosto zvezano z ekonomsko nedostopnostjo ali (ne)obstojem učinkovitega zdravila, občutljivo, saj otroci predstavljajo ranljivo skupino prebivalstva, na intuitivni ravni pa še ne živeto ali neizpolnjeno življenje pogosto šteje več kot že živeto ali izpolnjeno življenje. Prispevek ob ustavni pravici do zdravstvenega varstva in temeljih obveznega zdravstvenega zavarovanja obravnava splošno ureditev zdravljenja redkih bolezni v Sloveniji, vključno s pravico do zdravljenja v tujini in pravico oziroma dostopom do zdravil, ter posebnosti, ki jih v slovenski pravni red prinaša ZSFZRB. Keywords: pravica do zdravstvenega varstva, pravica do zdravljenja, pravica do zdravljenja v tujini, zdravila, redke bolezni, obvezno zdravstveno zavarovanje Publication status: Published Publication version: Version of Record Publication date: 01.06.2026 Year of publishing: 2026 Number of pages: str. 151-170 Numbering: Letn. 26, [št.] 2/3 PID: 20.500.12556/DiRROS-29772  UDC: 342.7:616:614.2 ISSN on article: 1580-6316 COBISS.SI-ID: 279809795  Publication date in DiRROS: 05.06.2026 Views: 99 Downloads: 46 Metadata:    Cite this work Plain text BibTeX EndNote XML EndNote/Refer RIS ABNT ACM Ref AMA APA Chicago 17th Author-Date Harvard IEEE ISO 690 MLA Vancouver : Copy citation

Share: Hover the mouse pointer over a document title to show the abstract or click on the title to get all document metadata.

Record is a part of a journal

Title:	Delavci in delodajalci : revija za delovno pravo in pravo socialne varnosti
Shortened title:	Delav. delod.
Publisher:	Inštitut za delo, Pravna fakulteta
ISSN:	1580-6316
COBISS.SI-ID:	112596992

Licences

License:	CC BY-SA 4.0, Creative Commons Attribution-ShareAlike 4.0 International
Link:	http://creativecommons.org/licenses/by-sa/4.0/
Description:	This Creative Commons license is very similar to the regular Attribution license, but requires the release of all derivative works under this same license.

Secondary language

Language:	English
Title:	The right to treatment of rare diseases in Slovenia
Abstract:	At the beginning of this year, the Parliament adopted the Act on the Fund for the Financing of the Treatment of Rare Diseases (ZSFZRB), intended to establish a systemic, earmarked source of funding for the treatment of rare diseases, which generally affect children. This makes the debate on the right to treatment of rare diseases - often linked to economic inaccessibility or the (non)existence of effective medication - particularly sensitive, as children represent a vulnerable group of the population. Additionally, a life not yet lived or not yet fulfilled is often considered more valuable than one already lived or fulfilled on an intuitive level. The paper, based on the constitutional right to healthcare and the foundations of compulsory health insurance, addresses the general regulation of the treatment of rare diseases in Slovenia, including the right to treatment abroad and the right or access to medicines, as well as the specific features introduced into the Slovenian legal system by the ZSFZRB.
Keywords:	right to healthcare, right to healthcare abroad, medication, rare disease, compulsory health insurance

Back