| Title: | Paediatric palliative care in clinical practice : ethical issues in advance care planning and end-of-life decisions |
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| Authors: | ID Meglič, Anamarija (Author)
ID Lisec, Ajda (Author) |
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| Files: |  PDF - Presentation file, download (338,40 KB)
MD5: 7840D48F596C31E9C99ACFEA7A62D5E7
 URL - Source URL, visit https://onlinelibrary.wiley.com/doi/10.1111/jep.70094
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| Language: | English |
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| Typology: | 1.01 - Original Scientific Article |
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| Organization: |  UKC LJ - Ljubljana University Medical Centre
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| Abstract: | Rationale This study examines ethical challenges faced by a paediatric palliative care (PPC) team when making end-of-life (EOL) decisions for children with life-limiting conditions. Aim To assess the team's attitudes towards ethical issues and propose innovative solutions. Methods The data was collected in 2022 at the University Children's Hospital Ljubljana. A researcher-made questionnaire was developed based on team experience. Ten PPC team members participated anonymously, evaluating ethical concerns in communication, decision-making, and patient characteristics. Mann–Whitney U test was used to analyze the data. Results Ethical issues emerge when coordinating treatment opinions becomes challenging, resulting in excluding a child from PPC. Situations involving communication, differing healthcare opinions, and patient characteristics were seen as ethical issues, highlighting the importance of communication and shared decision-making. Conclusions Ethical complexities in paediatric EOL care require adept communication and interdisciplinary teamwork. Poor communication may be associated with excluding children from PPC. Innovative strategies and ongoing training are vital to address these challenges effectively, ensuring optimal care for children and their families. |
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| Keywords: | end-of-life decision, ethics, children, palliative care, advance care planning |
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| Publication status: | Published |
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| Publication version: | Version of Record |
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| Year of publishing: | 2025 |
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| Number of pages: | 7 str. |
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| Numbering: | Vol. 31, iss. 3, [article no.] e70094 |
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| PID: | 20.500.12556/DiRROS-27940  |
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| UDC: | 616-053.2 |
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| ISSN on article: | 1356-1294 |
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| DOI: | 10.1111/jep.70094 |
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| COBISS.SI-ID: | 237145859 |
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| Publication date in DiRROS: | 27.02.2026 |
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| Views: | 30 |
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| Downloads: | 13 |
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