| Title: | Quality of life in adults with congenital heart disease : insights from a tertiary centre |
|---|
| Authors: | ID Kačar, Polona (Author)
ID Flander, Melita (Author)
ID Prokšelj, Katja (Author) |
|---|
| Files: |  PDF - Presentation file, download (190,40 KB)
MD5: 5F4F3FFD72068F61A5B94D34D602CEE3
 URL - Source URL, visit https://www.mdpi.com/2077-0383/14/20/7451
|
|---|
| Language: | English |
|---|
| Typology: | 1.01 - Original Scientific Article |
|---|
| Organization: |  UKC LJ - Ljubljana University Medical Centre
|
|---|
| Abstract: | Objective: As the survival of individuals born with congenital heart disease (CHD) improves into adulthood, the focus has shifted from traditional clinical outcomes to patient-reported outcome measures that better reflect the impact of the disease on daily life. Our aim was to assess the quality of life (QoL) of adult patients with congenital heart disease (ACHD) followed in a tertiary centre and to evaluate the parameters that influence QoL in this population. Methods: This cross-sectional observational study included patients followed up at the national referral ACHD centre between April and September 2022. Sociodemographic and clinical data were collected from medical records and self-report questionnaires. Quality of life (QoL) was assessed using the validated Short Form–36 (SF-36) and Euro Quality of Life–5 Dimension (EQ-5D) questionnaires, including the EQ Visual Analogue Scale (VAS). Results: A total of 123 ACHD patients were included (median age 34 (29–41) years; 43.9% male). Most participants had moderate CHD (61%), and 14.6% were cyanotic. Overall, SF-36 Physical Component Summary scores were higher than Mental Component Summary scores. Almost half of the patients (48.8%) reported no problems in all five domains of the EQ-5D, with most problems reported in anxiety/depression domain. Patients with severe CHD, cyanosis, or HF reported lower QoL scores across multiple SF-36 domains, particularly general health, role–physical, and physical functioning domains. Conclusions: QoL among ACHD patients in our cohort was generally high in most domains as assessed by the SF-36 and EQ-5D. Patients with HF reported lower QoL scores, emphasizing the importance of close clinical follow-up and the need for tailored QoL assessment tools for this complex population. |
|---|
| Keywords: | adults, congenital heart disease, quality of life |
|---|
| Publication status: | Published |
|---|
| Publication version: | Version of Record |
|---|
| Year of publishing: | 2025 |
|---|
| Number of pages: | str. 1-10 |
|---|
| Numbering: | Vol. 14, iss. 20, [article no.] 7451 |
|---|
| PID: | 20.500.12556/DiRROS-24749  |
|---|
| UDC: | 616.1 |
|---|
| ISSN on article: | 2077-0383 |
|---|
| DOI: | 10.3390/jcm14207451 |
|---|
| COBISS.SI-ID: | 257751043 |
|---|
| Note: | Nasl. z nasl. zaslona;
Opis vira z dne 19. 11. 2025;
|
|---|
| Publication date in DiRROS: | 16.12.2025 |
|---|
| Views: | 18 |
|---|
| Downloads: | 12 |
|---|
| Metadata: |    |
|---|
|
:
|
Copy citation |
|---|
| | | | Share: |  |
|---|
Hover the mouse pointer over a document title to show the abstract or click
on the title to get all document metadata. |
