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Title:ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life : a Delphi study
Authors:ID McGlinchey, Tamsin (Author)
ID Mason, Stephen (Author)
ID Smeding, Ruthmarijke (Author)
ID Goosensen, Anne (Author)
ID Ruiz-Torreras, Inmaculada (Author)
ID Haugen, Dagny Renata Faksvåg (Author)
ID Bakan, Miša, Klinika Golnik (Author)
ID Ellershaw, John (Author)
Files:URL URL - Source URL, visit https://journals.sagepub.com/doi/pdf/10.1177/02692163211045305
 
Language:English
Typology:1.01 - Original Scientific Article
Organization:Logo UKPBAG - University Clinic of Respiratory and Allergic Diseases Golnik
Abstract:Background: Volunteers make a huge contribution to the health and wellbeing of the population and can improve satisfaction with care especially in the hospice setting. However, palliative and end-of-life-care volunteer services in the hospital setting are relatively uncommon. The iLIVE Volunteer Study, one of eight work-packages within the iLIVE Project, was tasked with developing a European Core Curriculum for End-of-Life-Care Volunteers in hospital. Aim: Establish an international consensus on the content of a European Core Curriculum for hospital end-of-life-care volunteer services which support patients in the last weeks of life. Design: Delphi Process comprising the following three stages: 1. Scoping review of literature into palliative care volunteers. 2. Two rounds of Delphi Questionnaire. 3. Nominal Group Meeting. Setting/participants: Sixty-six participants completed the Round 1 Delphi questionnaire; 75% (50/66) took part in Round 2. Seventeen participants attended the Nominal Group Meeting representing an international and multi-professional group including, clinicians, researchers and volunteer coordinators from the participating countries. Results: The scoping review identified 88 items for the Delphi questionnaire. Items encompassed organisational issues for implementation and topics for volunteer training. Three items were combined and one item added in Round 2. Following the Nominal Group Meeting 53/87 items reached consensus. Conclusion: Key items for volunteer training were agreed alongside items for implementation to embed the end-of-life-care volunteer service within the hospital. Recommendations for further research included in-depth assessment of the implementation and experiences of end-of-life-care volunteer services. The developed European Core Curriculum can be adapted to fit local cultural and organisational contexts.
Keywords:palliative care, death, volunteers, hospitals, consensus, Delphi technique, end-of-life care, Delphi study, iLIVE project
Publication status:Published
Publication version:Version of Record
Publication date:20.10.2021
Place of publishing:ZDA
Publisher:Sage Publications
Year of publishing:2022
Number of pages:str. 652-670
Numbering:Vol. 36, iss. 4
PID:20.500.12556/DiRROS-15469 New window
UDC:364
ISSN on article:1477-030X
DOI:10.1177/02692163211045305 New window
COBISS.SI-ID:120847619 New window
Copyright:© The Author(s) 2021.
Note:Nasl. z nasl. zaslona; Soavtorica iz Slovenije: Miša Bakan; Opis vira z dne 9. 9. 2022;
Publication date in DiRROS:13.09.2022
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Downloads:275
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Record is a part of a journal

Title:Palliative medicine
Shortened title:Palliat. med.
Publisher:Sage Publications
ISSN:1477-030X
COBISS.SI-ID:518310937 New window

Document is financed by a project

Funder:EC - European Commission
Funding programme:H2020
Project number:825731
Name:Living well, dying well. A research programme to support living until the end
Acronym:iLIVE

Licences

License:CC BY 4.0, Creative Commons Attribution 4.0 International
Link:http://creativecommons.org/licenses/by/4.0/
Description:This is the standard Creative Commons license that gives others maximum freedom to do what they want with the work as long as they credit the author.
Licensing start date:20.10.2021

Secondary language

Language:Slovenian
Title:ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life: a Delphi study
Keywords:paliativna oskrba, smrt, prostovoljci, bolnišnice, soglasje, Delfska študija, oskrba ob koncu življenja, projekt iLIVE


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