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Title:Achieving thoracic oncology data collection in Europe : a precursor study in 35 countries
Authors:ID Rich, Anna (Author)
ID Baldwin, David R. (Author)
ID Alfageme, Inmaculada (Author)
ID Beckett, Paul (Author)
ID Berghmans, Thierry (Author)
ID Brincat, Stephen (Author)
ID Burghuber, Otto (Author)
ID Corlateanu, Alexandru (Author)
ID Čufer, Tanja, Klinika Golnik, Medicinska fakulteta UL (Author)
ID Damhuis, Ronald (Author)
Files:.pdf PDF - Presentation file, download (700,23 KB)
MD5: 0C3963679A83E49CB77F506F0EC35C51
 
Language:English
Typology:1.01 - Original Scientific Article
Organization:Logo UKPBAG - University Clinic of Respiratory and Allergic Diseases Golnik
Abstract:Background: A minority of European countries have participated in international comparisons with high level data on lung cancer. However, the nature and extent of data collection across the continent is simply unknown, and without accurate data collection it is not possible to compare practice and set benchmarks to which lung cancer services can aspire. Methods: Using an established network of lung cancer specialists in 37 European countries, a survey was distributed in December 2014. The results relate to current practice in each country at the time, early 2015. The results were compiled and then verified with co-authors over the following months. Results: Thirty-five completed surveys were received which describe a range of current practice for lung cancer data collection. Thirty countries have data collection at the national level, but this is not so in Albania, Bosnia- Herzegovina, Italy, Spain and Switzerland. Data collection varied from paper records with no survival analysis, to well-established electronic databases with links to census data and survival analyses. Conclusion: Using a network of committed clinicians, we have gathered validated comparative data reporting an observed difference in data collection mechanisms across Europe. We have identified the need to develop a welldesigned dataset, whilst acknowledging what is feasible within each country, and aspiring to collect high quality data for clinical research.
Keywords:lung neoplasms -- epidemiology -- Europe, lung cancer, studies
Publication status:Published
Publication version:Version of Record
Place of publishing:Velika Britanija
Publisher:Springer Nature
Year of publishing:2018
Number of pages:str. 1-12
Numbering:[Vol.] 18
PID:20.500.12556/DiRROS-12628 New window
UDC:616-006
ISSN on article:1471-2407
DOI:10.1186/s12885-018-5009-y New window
COBISS.SI-ID:2048431473 New window
Copyright:© The Author(s). 2018
Note:Soavtorji: David Baldwin, Inmaculada Alfageme, Paul Beckett, Thierry Berghmans, Stephen Brincat, Otto Burghuber, Alexandru Corlateanu, Tanja Cufer, Ronald Damhuis, Edvardas Danila, Joanna Domagala-Kulawik, Stefano Elia, Mina Gaga, Tuncay Goksel, Bogdan Grigoriu, Gunnar Hillerdal, Rudolf Maria Huber, Erik Jakobsen, Steinn Jonsson, Dragana Jovanovic, Elena Kavcova, Assia Konsoulova, Tanel Laisaar, Riitta Makitaro, Bakir Mehic, Robert Milroy, Judit Moldvay, Ross Morgan, Milda Nanushi, Marianne Paesmans, Paul Martin Putora, Miroslav Samarzija, Arnaud Scherpereel, Marc Schlesser, Jean-Paul Sculier, Jana Skrickova, Renato Sotto-Mayor, Trond-Eirik Strand, Paul Van Schil in Torsten-Gerriet Blum; Nasl. z nasl. zaslona; Opis vira z dne 13. 12. 2018; Članek št. 1144;
Publication date in DiRROS:12.11.2020
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Record is a part of a journal

Title:BMC cancer
Shortened title:BMC Cancer
Publisher:BioMed Central
ISSN:1471-2407
COBISS.SI-ID:2434324 New window

Licences

License:CC BY 4.0, Creative Commons Attribution 4.0 International
Link:http://creativecommons.org/licenses/by/4.0/
Description:This is the standard Creative Commons license that gives others maximum freedom to do what they want with the work as long as they credit the author.
Licensing start date:20.11.2018

Secondary language

Language:Undetermined
Keywords:pljučne novotvorbe -- epidemiologija -- Evropa, pljučni rak, raziskave


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