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Iskalni niz: "ključne besede" (ethics) .

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1.
Confronting an ethical matter in College and University Archives : a shift to lesser access protocols regarding digitized theses as a case study
Karen Jamison Trivette, 2022, pregledni znanstveni članek

Povzetek: Ethical issues abound within the archival science landscape, accessibility matters not the least among them. These issues are further compounded by the evolving nature of records themselves, morphing from analog to digital forms or their being born-digital records. In this paper, the author will recall and reflect upon her experience of confronting an ethical quandary very early in her tenure at her present employer, a publicly-funded university. The ethical quandary in question was one related to theses written and delivered as graduation requirements across graduate programs in the university; upon deposit, they were deemed part of the College Archives. The theses’ accessibility was dramatically reduced after legacy and current theses were digitized (and later, born-digital) and due to a major pivot regarding their storage infrastructure and retrieval protocols. This extreme shift towards access reduction is one that the writer believes to be unethical in a publicly-funded institutional archives domain given the more access rather than less paradigm within the profession and which digitization typically promises.
Ključne besede: ETDs (electronic theses and dissertations), accessibility, institutional repositories, college archives, ethics
Objavljeno v DiRROS: 06.08.2026; Ogledov: 93; Prenosov: 57
.pdf Celotno besedilo (1,03 MB)
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2.
Knowledge of and attitudes towards medical research ethics among frst year doctoral students in Slovenia at the Faculty of Medicine, University of Ljubljana
Štefan Grosek, Dušica Pleterski-Rigler, Matej Podbregar, Vanja Erčulj, 2023, izvirni znanstveni članek

Povzetek: Background Research ethics and attitudes should be the main concern of those who are conducting and publishing research in medicine. Methods A cross-sectional study was conducted using a questionnaire among frst year postgraduate doctoral students in Biomedicine at the Faculty of Medicine, University of Ljubljana during the academic year 2022/2023. Results There were 54 out of 57 doctoral students included in the study, with a mean age (SD) of 29.7 (4.7) years, with predominantly female doctoral students, 66.7%. The number of correct answers out of 39 considered to illustrate students’ knowledge of medical research ethics was 31, meaning that they gave correct answers to 80% of all the questions. The mean number (SD) of correct answers was 18.9 (5.8), which signifcantly difered from 31 (p<0.001). The previous experience of the doctoral students in research was signifcantly correlated with their knowledge of medical research ethics, even when controlling for the age, gender and workplace of respondents. Conclusion This study clearly showed that insufcient knowledge and a poor level of attitudes exist about the main questions pertaining to medical research ethics. Overall knowledge is well below the expected positive answers. Further studies are needed to compare the knowledge of doctoral students with that of their tutors and what implications this might have for further teaching of research ethics.
Ključne besede: research ethics, integrity, doctoral students, biomedicine, Slovenia, Faculty of Medicine, University of Ljubljana
Objavljeno v DiRROS: 05.08.2026; Ogledov: 89; Prenosov: 39
.pdf Celotno besedilo (1,20 MB)
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3.
Rhythms and silences of salt-working : an essay on elemental listening
Maja Bjelica, 2026, izvirni znanstveni članek

Povzetek: This article is an account of how elemental listening to the rhythms and silences of the specific processes of salt-working allows for the generation of forms and contents of knowing that were previously mainly assumed and transmitted as obvious. In this essay, situated within the field of posthumanities, the author attempts to connect a variety of research fields through a common grounded experience—elemental listening. First, the text presents its wider context, that is, the broad field of environmental (post)humanities, stressing the crucial role of affirmative ethics within its framework. The author then moves to the theoretical background of listening and its ethics, which is subsequently connected to conceptualizations of rhythms and silences beyond the usually assumed dichotomies. Only at this point is the research field introduced, namely the old heritage of salt-working, an intricate process employed in the saltworks of the North Adriatic, in this case the Sečovlje saltworks in Slovenia. As a final step, the author attempts to connect all these research fields and themes into an experiential insight into the possibilities that listening opens up for generating new ways of knowing as a posthuman path that encourages affirmative ethics and enables connections with the more-than-human.
Ključne besede: listening, ethics of listening, rhythms, silences, salt-working, elemental philosophy, environmental humanities
Objavljeno v DiRROS: 03.08.2026; Ogledov: 98; Prenosov: 60
.pdf Celotno besedilo (679,40 KB)
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4.
The Ethical Imperative in the Oral History Method : Select Observations on Historical Research on Migration and Border Spaces
Urška Strle, 2023, izvirni znanstveni članek

Povzetek: The field of ethics is one of the key considerations in all spheres of scientific research, and oral history is no exception. Despite its seemingly easy method of acquiring knowledge about the past, oral history is one of the most sensitive and demanding methods of historical research, and ethical considerations should therefore be given central importance. The article is empirically based on observation of public practices and field experience in collecting testimonies with post-war emigrants to Canada and with individuals from the Soča (Isonzo) river basin, a border area with a high level of emigration. It serves as a contribution to raising awareness regarding the ethical aspects of oral history, which are on average rather poorly reflected.
Ključne besede: oral history, ethics, fieldwork, legal frameworks, public use of testimonies
Objavljeno v DiRROS: 08.07.2026; Ogledov: 164; Prenosov: 130
.pdf Celotno besedilo (1,37 MB)
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5.
Regulation of Sexual Harassment in the Academic Environment : Between Legal Regulations and Ethical Codes
Katja Filipčič, Manja Skočir, 2024, izvirni znanstveni članek

Povzetek: This article analyses the regulation of sexual harassment within the academic environment. It highlights that sexual harassment is addressed not only by legal regulations but also through codes of ethics. It demonstrates that sexual harassment is recognised as a violation of ethical norms and public ethics in the codes of many professional associations, yet it is also regulated by statutory laws, bylaws, and other general acts. The article examines the distinctions between the regulation of sexual harassment by codes of ethics and legal acts, and identifies the challenges in defining sexual harassment in accordance with the fundamental principles of criminal law. It further explores various forms of accountability relevant to members of the academic community. Finally, it discusses the role of internal regulations, providing insights into their structure and the regulation of sexual harassment within Slovenian higher education organisations.
Ključne besede: sexual harassment, codes of ethics, academia, criminal liability, liability under employment law, disciplinary liability, internal regulations
Objavljeno v DiRROS: 01.07.2026; Ogledov: 171; Prenosov: 133
.pdf Celotno besedilo (1,24 MB)
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6.
Preserving the Past for the Future : Architecture with the Legacy of Care and Aesthetics
Mojca Puncer, Vesna Žegarac Leskovar, Peter Šenk, 2025, izvirni znanstveni članek

Povzetek: The aim of the article is to use a literature review to identify the dimensions of care from the perspective of heritage science, which is a highly interdisciplinary academic field. In this case, it includes philosophy, architectural theory and a broader theory of care that should be addressed for a comprehensive study of concepts of care in architecture and architecture-orientated art. In the analysis of selected architectural heritage interventions, special attention is given to aspects of care and aspects of aesthetics in order to develop a new methodology for identifying and evaluating interventions in the built environment.
Ključne besede: heritage science, architecture, urban design, adaptive reuse, care, (philosophical) aesthetics, care aesthetics/aesthetics of care, care ethics, contemporary art practice
Objavljeno v DiRROS: 19.06.2026; Ogledov: 163; Prenosov: 141
.pdf Celotno besedilo (2,17 MB)
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7.
Navigating the shadows : medical professionals' values and perspectives on end-of-life care within pediatric intensive care units in Croatia
Marko Ćurković, Filip Rubic, Ana Jozepovic, Milivoj Novak, Boris Filipović-Grčić, Julije Meštrović, Kristina Lah Tomulić, Branimir Peter, Diana Špoljar, Štefan Grosek, 2024, izvirni znanstveni članek

Povzetek: Background and aim: This study explores healthcare professionals' perspectives on end-of-life care in pediatric intensive care units (ICUs) in Croatia, aiming to illuminate their experiences with such practices, underlying attitudes, and major decision-making considerations. Amid the high variability, complexity, and emotional intensity of pediatric end-of-life decisions and practices, understanding these perspectives is crucial for improving care and policies. Methods: The study utilized a cross-sectional survey intended for physicians and nurses across all pediatric ICUs in Croatia. It included healthcare professionals from six neonatal and four pediatric ICUs in total. As the data from neonatal and pediatric ICUs were examined jointly, the term pediatric ICU was used to denominate both types of ICUs. A statistical analysis was performed using Python and JASP, focusing on professional roles, professional experience, and regional differences. Results: The study included a total of 103 participants (with an overall response rate-in relation to the whole target population-of 48% for physicians and 29% for nurses). The survey revealed diverse attitudes toward and experiences with various aspects of end-of-life care, with a significant portion of healthcare professionals indicating infrequent involvement in life-sustaining treatment (LST) limitation discussions and decisions, as well as somewhat ambiguous attitudes regarding such practices. Notably, discrepancies emerged between different professional roles and, in particular, regions, underscoring the high variability of LST limitation-related procedures. Conclusions: The findings highlight a pressing need for more straightforward guidelines, legal frameworks, support mechanisms, and communication strategies to navigate the complex terrain of rather burdensome end-of-life pediatric care, which is intrinsically loaded with profound ethical quandaries.
Ključne besede: end of life, ethics, healthcare professionals, intensive care, intensive care units, pediatrics, withdrawing, withholding
Objavljeno v DiRROS: 08.06.2026; Ogledov: 404; Prenosov: 154
.pdf Celotno besedilo (863,37 KB)
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8.
Paediatric palliative care in clinical practice : ethical issues in advance care planning and end-of-life decisions
Anamarija Meglič, Ajda Lisec, 2025, izvirni znanstveni članek

Povzetek: Rationale This study examines ethical challenges faced by a paediatric palliative care (PPC) team when making end-of-life (EOL) decisions for children with life-limiting conditions. Aim To assess the team's attitudes towards ethical issues and propose innovative solutions. Methods The data was collected in 2022 at the University Children's Hospital Ljubljana. A researcher-made questionnaire was developed based on team experience. Ten PPC team members participated anonymously, evaluating ethical concerns in communication, decision-making, and patient characteristics. Mann–Whitney U test was used to analyze the data. Results Ethical issues emerge when coordinating treatment opinions becomes challenging, resulting in excluding a child from PPC. Situations involving communication, differing healthcare opinions, and patient characteristics were seen as ethical issues, highlighting the importance of communication and shared decision-making. Conclusions Ethical complexities in paediatric EOL care require adept communication and interdisciplinary teamwork. Poor communication may be associated with excluding children from PPC. Innovative strategies and ongoing training are vital to address these challenges effectively, ensuring optimal care for children and their families.
Ključne besede: end-of-life decision, ethics, children, palliative care, advance care planning
Objavljeno v DiRROS: 27.02.2026; Ogledov: 511; Prenosov: 383
.pdf Celotno besedilo (338,40 KB)
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9.
Ethics and end-of-life in pediatric and neonatal ICUs : a systematic review of recommendations
Diana Špoljar, Sunčana Janković, Dina Vrkić, Geraldine McNamara, Marko Ćurković, Milivoj Novak, Boris Filipović-Grčić, Štefan Grosek, Chris Gastmans, Bert Gordijn, 2025, izvirni znanstveni članek

Povzetek: Background: Working in neonatal intensive care units (NICUs) or pediatric intensive care units (PICUs) entails making difficult decisions about children at the end of their lives that raise significant ethical issues. This review identified the ethical content of the papers containing expert guidelines and recommendations in relation to end-of-life decision-making in NICUs and PICUs, by analyzing ethical positions and ethical principles behind them. Methods: Systematic search was limited to the period from 1990 to 2023 and encompassed 6 bibliographic databases (Medline, PubMed, CINAHL, APA PsycINFO, Web of Science Core Collection, and Scopus), grey literature sources and relevant reference lists. The international, national, or institutional papers providing expert guidelines and recommendations comprehensively addressing either withholding/withdrawing of life sustaining treatment, palliative care, and/or intentional life terminating actions in NICUs and PICUs were included in analysis. Also, only papers published in English language were considered. Papers that were not developed by intensive care expert communities and those that were either too narrow (e.g., dealing with specific issues or specific patient groups) or broad (e.g., addressing issues of interest on general and abstract level) were excluded. The search data were gathered and deduplicated, partly by Mendeley software. Titles and abstracts were screened by three independent reviewers, and full-text papers further reviewed and assessed for eligibility. Subsequently, data of interest were extracted, and qualitative analysis was performed. Results: Initial search retrieved 6784 papers from bibliographic databases and 363 from other utilized sources. Titles and abstracts from 2827 papers were screened. 17 full texts were further assessed resulting in a total number of 9 papers (6 from bibliographic databases and 3 from other sources) which met the inclusion criteria and were included for analysis. The papers were published from 2001 to 2021. Four papers primarily focus on NICU setting, while five on PICU. A total of 38 ethical positions were identified and were grouped under 5 themes according to the content of the positions, relating to: patients, parents, medical team, decision-making and treatment options. A total of 12 ethical principles were mentioned in the papers. The principle of beneficence emerged as the most prominent one. It was explicitly mentioned in all included papers except one. Conclusions: This review has shown that papers containing guidelines and recommendations on end-of-life decision-making in the NICU and PICU promote similar stances. The ethical principle of beneficence is at the core of the decision-making process, and all decisions are made focusing on the child's best interests.
Ključne besede: decision-making, end-of-life, ethics, NICU, PICU
Objavljeno v DiRROS: 26.02.2026; Ogledov: 437; Prenosov: 251
.pdf Celotno besedilo (1,87 MB)
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10.
Ethical aspects of limiting end-of-Life treatment of adult patients at the primary healthcare level in family and emergency medicine : a systematic review
Meta Krajnc, Urh Grošelj, Erika Zelko, 2025, izvirni znanstveni članek

Povzetek: Background Decisions to limit treatment near the end of life are challenging and common in primary healthcare, especially in family and emergency medicine. Objectives This review aimed to [1] examine the evidence on the decision-making process regarding treatment limitation in end-of-life care in family and emergency medicine [2], identify associated ethical considerations, and [3] compare the evidence between family and emergency medicine. Methods A systematic search of PubMed and Embase was conducted for studies published between 2004 and 2024. Eligible studies focused on ethical aspects of limiting treatment in end-of-life care in family and emergency medicine, such as decision-making processes, influencing factors, and ethical considerations. Quality was assessed using adapted Critical Appraisal Skills Programme checklists. Results Of the 477 identified studies, 12 met the inclusion criteria. Eight papers reported research on treatment limitations in emergency medical care, two in family/general medicine, one on medication discontinuation in endof-life care, and one on goals-of-care conversations in emergency departments. Patients, families and colleagues were involved to varying degrees. Family physicians were rarely included in emergency care decisions, despite their potential to align care with patient preferences. Decision-making in emergency medicine was characterized by rapid, protocol-driven processes, often constrained by time and workload, while decisions in family medicine relied on longitudinal patient relationships and clinical judgment, though lacking formalized guidelines. Key factors influencing decisions on limiting treatment included patient and family wishes and values, illness severity, prognosis, previous functional limitation, age, poor predicted quality of life and cultural and religious contexts. Conclusion Our review showed that decisions regarding treatment limitations in primary care settings remain underexplored, particularly in family medicine. More research and development of clearer guidelines, as well as enhanced collaboration between family and emergency physicians, could improve primary end-of-life care.
Ključne besede: ethics, end-of-life care, treatment limitation, primary care, family medicine, emergency medicine, systematic review
Objavljeno v DiRROS: 23.02.2026; Ogledov: 499; Prenosov: 269
.pdf Celotno besedilo (1,12 MB)
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