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Iskalni niz: "avtor" (Marjan Jahanshahi) .

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1.
Subjective well-being and its predictors in Parkinson's disease and dystonia : a comparative study
Suzette Shahmoon, Dejan Georgiev, Paul Jarman, Kailash P. Bhatia, Patricia Limousin, Marjan Jahanshahi, 2025, izvirni znanstveni članek

Povzetek: Background: Quality of life (QoL) is a commonly used outcome measure in people with chronicneurological diseases (CND). As valuable as QoL is, it does not take into account aspects of subjective well-being (SWB) such as subjective happiness, meaning in life, life satisfaction and hope; all constructs that areconsidered central to well-being.ObjectivesObjectives: The goal was to assess how the different aspects of SWB are altered in Parkinson’s disease(PD) and dystonia relative to healthy controls (HCs) and to identify the most important predictors of differentdimensions of SWB in PD and dystonia.MethodsMethods: Eighty-two people with PD, 63 with dystonia, and 50 HCs were surveyed using various measuresof SWB.ResultsResults: People with PD and dystonia had significantly lower satisfaction with life than HCs, with self-esteemand loneliness being significant covariates. Although people with PD and dystonia had significantly lessmeaning in life, they still sought meaning in life as much as HCs. Self-esteem, resilience and neuroticism weresignificant covariates for the presence of “meaning in life.” There were no significant group differences insubjective happiness or hope. In people with PD, mood (depression and anxiety), personality traits (extraversionand self-esteem), disease duration, and pain/discomfort were significant predictors of various measures ofSWB. The main significant predictor of SWB in dystonia was depression, which predicted 49% of the variance insubjective happiness.ConclusionsConclusions: These results emphasize the importance of SWB as a field of investigation and clinical care in themanagement of people with PD and dystonia
Ključne besede: dystonia, Parkinson's disease, positive psychology, self-esteem, subjective well-being
Objavljeno v DiRROS: 10.12.2025; Ogledov: 822; Prenosov: 132
.pdf Celotno besedilo (296,72 KB)
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2.
Predictors of loneliness in Parkinson's disease and craniocervical dystonia
Suzette Shahmoon, Dejan Georgiev, Paul Jarman, Kailash P. Bhatia, Patricia Limousin, Marjan Jahanshahi, 2025, izvirni znanstveni članek

Povzetek: Background Loneliness is a state in which an individual feels socially isolated due to deficiencies in the quantity or quality of social relationships and interaction. To date very little is known about loneliness in Parkinson's disease (PD) and focal/segmental craniocervical dystonia (FSCD). Objectives To explore whether level of loneliness is disease-specific by comparing PD, FCSD and healthy controls (HCs), and to define predictors of loneliness in both PD and FSCD. Methods Eighty-two people with PD, 63 people with FSCD and 50 HC were surveyed. The UCLA Loneliness Scale was used to assess loneliness. Various non-motor symptoms, psychosocial variables and measures of subjective well-being were assessed and used as potential predictors of loneliness. Results There was no significant difference in reported levels of loneliness between people with PD and matched HCs, and between people with PD and people with FSCD, but people with FSCD reported higher levels of loneliness than HCs (p = 0.018). Perceived stigma predicted loneliness in both disease groups (p < 0.001). Additionally, non-motor symptoms (p = 0.006), lack of optimism (p = 0.015) and practical social support (p = 0.006) predicted loneliness in people with PD. Patients with PD and FSCD with higher perceived stigma levels felt lonelier (p < 0.001), as did female patients with PD (p = 0.004), younger patients with FSCD (p = 0.007) and older patients with PD (p = 0.023). Conclusions We identified important predictors of loneliness in PD and FSCD. The identified age- and gender-specific differences in loneliness in people with PD and FSCD contribute to our better understanding of this complex and not yet fully understood concept.
Ključne besede: loneliness, Parkinson's disease, focal/segmental craniocervical dystonia, optimism and stigma
Objavljeno v DiRROS: 04.12.2025; Ogledov: 407; Prenosov: 127
.pdf Celotno besedilo (281,64 KB)
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