20.500.12556/DiRROS-27940 Paediatric palliative care in clinical practice ethical issues in advance care planning and end-of-life decisions Rationale This study examines ethical challenges faced by a paediatric palliative care (PPC) team when making end-of-life (EOL) decisions for children with life-limiting conditions. Aim To assess the team's attitudes towards ethical issues and propose innovative solutions. Methods The data was collected in 2022 at the University Children's Hospital Ljubljana. A researcher-made questionnaire was developed based on team experience. Ten PPC team members participated anonymously, evaluating ethical concerns in communication, decision-making, and patient characteristics. Mann–Whitney U test was used to analyze the data. Results Ethical issues emerge when coordinating treatment opinions becomes challenging, resulting in excluding a child from PPC. Situations involving communication, differing healthcare opinions, and patient characteristics were seen as ethical issues, highlighting the importance of communication and shared decision-making. Conclusions Ethical complexities in paediatric EOL care require adept communication and interdisciplinary teamwork. Poor communication may be associated with excluding children from PPC. Innovative strategies and ongoing training are vital to address these challenges effectively, ensuring optimal care for children and their families. end-of-life decision ethics children palliative care advance care planning true false true Angleški jezik Ni določen Neznano 2026-02-27 14:02:53 2026-02-27 14:02:54 2026-03-01 03:40:29 0000-00-00 00:00:00 2025 0 0 7 str. iss. 3, [article no.] e70094 Vol. 31 Apr. 2025 0000-00-00 Zaloznikova Objavljeno NiDoloceno 0000-00-00 0000-00-00 0000-00-00 616-053.2 1356-1294 10.1111/jep.70094 237145859 RAZ_Meglic_Anamarija_2025.pdf RAZ_Meglic_Anamarija_2025.pdf 1 7840D48F596C31E9C99ACFEA7A62D5E7 27c1384d2ddef65ec27d9ce027c223dd29b76734ba7409e8119ccadc01aee501 cb96386f-13dc-11f1-8c73-001a4af901a5 https://dirros.openscience.si/Dokument.php?lang=slv&id=41153 https://onlinelibrary.wiley.com/doi/10.1111/jep.70094 1 a156417f-13dc-11f1-8c73-001a4af901a5 https://dirros.openscience.si/Dokument.php?lang=slv&id=41152 Univerzitetni klinični center Ljubljana 0 0 0