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Naslov:Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention : insights gained from the ACTION trial
Avtorji:Zwakman, Marieke (Avtor)
Delden, Johannes JM van (Avtor)
Caswell, Glenys (Avtor)
Deliens, Luc (Avtor)
Ingravallo, F. (Avtor)
Jabbarian, Lea J. (Avtor)
Johnsen, Anna Thit (Avtor)
Korfage, Ida Joanna (Avtor)
Mimič, Alenka (Avtor)
Møller Arnfeldt, C. (Avtor)
Lunder, Urška (Avtor)
Červ, Branka (Avtor)
Simonič, Anja (Avtor)
Kodba Čeh, Hana (Avtor)
Ozbič, Polona (Avtor)
Jezik:Angleški jezik
Tipologija:1.01 - Izvirni znanstveni članek
Organizacija:Logo UKPBAG - Univerzitetna klinika za pljučne bolezni in alergijo Golnik
Povzetek:Purpose. Writing an Advance Directive (AD) is often seen as a part of Advance Care Planning (ACP). ADs may include specific preferences regarding future care and treatment and information that provides a context for healthcare professionals and relatives in case they have to make decisions for the patient. The aim of this study was to get insight into the content of ADs as completed by patients with advanced cancer who participated in ACP conversations. Methods. A mixed methods study involving content analysis and descriptive statistics was used to describe the content of completed My Preferences forms, an AD used in the intervention arm of the ACTION trial, testing the effectiveness of the ACTION Respecting Choices ACP intervention. Results. In total, 33% of 442 patients who received the ACTION RC ACP intervention completed a My Preferences form. Document completion varied per country: 10.4% (United Kingdom), 20.6% (Denmark), 29.2% (Belgium), 41.7% (the Netherlands), 61.3% (Italy) and 63.9% (Slovenia). Content analysis showed that 'maintaining normal life' and 'experiencing meaningful relationships' were important for patients to live well. Fears and worries mainly concerned disease progression, pain or becoming dependent. Patients hoped for prolongation of life and to be looked after by healthcare professionals. Most patients preferred to be resuscitated and 44% of the patients expressed maximizing comfort as their goal of future care. Most patients preferred 'home' as final place of care. Conclusions. My Preferences forms provide some insights into patients' perspectives and preferences. However, understanding the reasoning behind preferences requires conversations with patients.
Ključne besede:advance care planning, psycho-oncology, medical oncology, ACTION study, cancer, end of life, dying persons
Leto izida:2019
Založnik:Springer Nature
Izvor:Nemčija
UDK:616-097
ISSN pri članku:1433-7339
OceCobissID:513740569 Povezava se odpre v novem oknu
COBISS_ID:51449091 Povezava se odpre v novem oknu
DOI:10.1007/s00520-019-04956-1 Povezava se odpre v novem oknu
Opombe:Nasl. z nasl. zaslona; Soavtorice iz Slovenije: A. Mimić, U. Lunder, B. Červ, A. Simonič, H. Kodba Čeh, P. Ozbič; Opis vira z dne 12. 2. 2021;
Število ogledov:34
Število prenosov:8
Datoteke:URL URL - Izvorni URL, za dostop obiščite https://link.springer.com/content/pdf/10.1007/s00520-019-04956-1.pdf
 
Nadgradivo:Support. care cancer
Springer
 
Metapodatki:XML RDF-CHPDL DC-XML DC-RDF
Avtorske pravice:(c) The Author(s) 2019
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Licence

Licenca:CC BY 4.0, Creative Commons Priznanje avtorstva 4.0 Mednarodna
Povezava:http://creativecommons.org/licenses/by/4.0/deed.sl
Opis:To je standardna licenca Creative Commons, ki daje uporabnikom največ možnosti za nadaljnjo uporabo dela, pri čemer morajo navesti avtorja.
Začetek licenciranja:05.09.2019

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