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Iskalni niz: "avtor" (Renata Ko%C5%A1ir-Poga%C4%8Dnik) .

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ILIVE Project Volunteer study. Developing international consensus for a European Core Curriculum for hospital end-of-life-care volunteer services, to train volunteers to support patients in the last weeks of life : a Delphi study
Tamsin McGlinchey, Stephen Mason, Ruthmarijke Smeding, Anne Goosensen, Inmaculada Ruiz-Torreras, Dagny Renata Faksvåg Haugen, Miša Bakan, John Ellershaw, 2022, izvirni znanstveni članek

Povzetek: Background: Volunteers make a huge contribution to the health and wellbeing of the population and can improve satisfaction with care especially in the hospice setting. However, palliative and end-of-life-care volunteer services in the hospital setting are relatively uncommon. The iLIVE Volunteer Study, one of eight work-packages within the iLIVE Project, was tasked with developing a European Core Curriculum for End-of-Life-Care Volunteers in hospital. Aim: Establish an international consensus on the content of a European Core Curriculum for hospital end-of-life-care volunteer services which support patients in the last weeks of life. Design: Delphi Process comprising the following three stages: 1. Scoping review of literature into palliative care volunteers. 2. Two rounds of Delphi Questionnaire. 3. Nominal Group Meeting. Setting/participants: Sixty-six participants completed the Round 1 Delphi questionnaire; 75% (50/66) took part in Round 2. Seventeen participants attended the Nominal Group Meeting representing an international and multi-professional group including, clinicians, researchers and volunteer coordinators from the participating countries. Results: The scoping review identified 88 items for the Delphi questionnaire. Items encompassed organisational issues for implementation and topics for volunteer training. Three items were combined and one item added in Round 2. Following the Nominal Group Meeting 53/87 items reached consensus. Conclusion: Key items for volunteer training were agreed alongside items for implementation to embed the end-of-life-care volunteer service within the hospital. Recommendations for further research included in-depth assessment of the implementation and experiences of end-of-life-care volunteer services. The developed European Core Curriculum can be adapted to fit local cultural and organisational contexts.
Ključne besede: palliative care, death, volunteers, hospitals, consensus, Delphi technique, end-of-life care, Delphi study, iLIVE project
Objavljeno v DiRROS: 13.09.2022; Ogledov: 405; Prenosov: 143
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Development of an international Core Outcome Set (COS) for best care for the dying person : study protocol
Sofia C. Zambrano, Dagny Renata Faksvåg Haugen, Agnes van der Heide, Vilma A. Tripodoro, John Ellershaw, Carl-Johan Fürst, Raymond Voltz, Stephen Mason, María L. Daud, Gustavo De Simone, Urška Lunder, Hana Kodba Čeh, Miša Bakan, 2020, izvirni znanstveni članek

Povzetek: Background: In contrast to typical measures employed to assess outcomes in healthcare such as mortality or recovery rates, it is difficult to define which specific outcomes of care are the most important in caring for dying individuals. Despite a variety of tools employed to assess different dimensions of palliative care, there is no consensus on a set of core outcomes to be measured in the last days of life. In order to optimise decision making in clinical practice and comparability of interventional studies, we aim to identify and propose a set of core outcomes for the care of the dying person. Methods: Following the COMET initiative approach, the proposed study will proceed through four stages to develop a set of core outcomes: In stage 1, a systematic review of the literature will identify outcomes measured in existing peer reviewed literature, as well as outcomes derived through qualitative studies. Grey literature, will also be included. Stage 2 will allow for the identification and determination of patient and proxy defined outcomes of care at the end of life via quantitative and qualitative methods at an international level. In stage 3, from a list of salient outcomes identified through stages 1 and 2, international experts, family members, patients, and patient advocates will be asked to score the importance of the preselected outcomes through a Delphi process. Stage 4 consists of a face-to-face consensus meeting of international experts and patient/family representatives in order to define, endorse, and propose the final Core Outcomes Set. Discussion: Core Outcome Sets aim at promoting uniform assessment of care outcomes in clinical practice as well as research. If consistently employed, a robust set of core outcomes for the end of life, and specifically for the dying phase, defined by relevant stakeholders, can ultimately be translated into best care for the dying person. Patient care will be improved by allowing clinicians to choose effective and meaningful treatments, and research impact will be improved by employing internationally agreed clinically relevant endpoints and enabling accurate comparison between studies in systematic reviews and/or in meta-analyses.
Ključne besede: palliative care, palliative medicine, Delphi technique, dying persons, Outcome research, last days of life, end of life
Objavljeno v DiRROS: 02.02.2021; Ogledov: 1246; Prenosov: 784
.pdf Celotno besedilo (792,31 KB)
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Hereditary angioedema due to C1-inhibitor deficiency in pediatric patients in Croatia : first national study, diagnostic and prophylactic challenges
Ljerka Karadža-Lapić, Marko Barešić, Renata Vrsalović, Irena Ivković-Jureković, Saša Sršen, Ingrid Prkačin, Matija Rijavec, Draško Cikojević, 2019, pregledni znanstveni članek

Povzetek: Hereditary angioedema (HAE) is a rare autosomal dominant disease with deficiency (type I) or dysfunction (type II) of C1 inhibitor, caused by mutations in the C1-INH gene, characterized by recurrent submucosal or subcutaneous edemas including skin swelling, abdominal pain and life-threatening episodes of upper airway obstruction. The aim of this study was to investigate healthcare experiences in children with HAE due to C1 inhibitor deficiency (C1-INH-HAE) in Croatia in order to estimate the number of affected children and to recommend management protocols for diagnosis, short-term prophylaxis and acute treatment. Patients were recruited during a 4-year period at five hospitals in Croatia. Complement testing was performed in patients with a positive family history. This pilot study revealed nine pediatric patients positive for C1-INH- HAE type I, aged 1-16 years, four of them asymptomatic. Before the age of one year, C1-INH levels may be lower than in adults; it is advisable to confirm C1-INH-HAE after the age of one year. Plasma-derived C1- INH is recommended as acute and short-term prophylactic treatment. Recombinant C1-INH and icatibant are licensed for the acute treatment of pediatric patients. In Croatia, HAE is still underdiagnosed in pediatric population.
Ključne besede: hereditary angioedemas -- genetics -- Croatia, inborn genetic diseases -- Croatia, pediatrics -- Croatia, C1 inhibitor, SERPING1 gene, children
Objavljeno v DiRROS: 16.12.2020; Ogledov: 1187; Prenosov: 947
.pdf Celotno besedilo (477,81 KB)
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Kako ukrepati v ambulanti takrat, ko se ženska ne odziva na vabila na ginekološki pregled?
Urška Gašper, Renata Toff-Jovan, Olga Kambič, 2012, objavljeni strokovni prispevek na konferenci

Ključne besede: ginekološki pregledi, neodzivnice, vabilo, kontrolni pregledi
Objavljeno v DiRROS: 07.04.2020; Ogledov: 1675; Prenosov: 483
.pdf Celotno besedilo (1,01 MB)

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Rak in tromboza
Marija Horvat, Renata Premzl, 2009, objavljeni strokovni prispevek na konferenci

Povzetek: Rak je bolezen sodobnega časa, zato je velikega pomena, da ga zgodaj odkrijemo in zdravimo. Prav tako poskušajo čim prej odkriti spremljajoče bolezni, med katere spada tudi zelo nevarna globoka venska tromboza. Za uspešno prepoznavanje tromboze morajo vsi izvajalci, ki delujejo ob bolnikih, poznati vzroke za nastanek, dejavnike tveganja, klinično sliko, kako bolezen diagnostricirajo, potrebne preiskave, vrste zdravljenja. Trombozo morajo znati ločiti od drugih bolezenskih dogajanj, poznati morajo komplikacije. Delovati morajo na preprečevanju venske tromboze. Dokazano je, da rakasta obolenja spremenijo delovanje fibrinolitičnega sistema, prav tako citostatiki povečajo nagnjenost k strjevanju krvi. Bolniki z rakom imajo štirikrat večje tveganje za nastanek venske tromboze in zdravljenje je veliko bolj tvegano zaradi večjenagnjenosti h krvavitvam. Zelo pomembno je delo izvajalcev zdravstvene nege pri bolnikih z vensko trombozo. Pravilno delovanje zdravstvene nege vpliva tako na prepoznavanje venske tromboze kot na zdravljenje, ko je ta že diagnosticirana. Zdravstveno nego izvajamo po procesni metodi dela, s katero postavljamo diagnoze, izvajanje, vrednotenje in cilje zdravstvene nege. V prispevku je predstavljena študija primera.
Objavljeno v DiRROS: 23.01.2020; Ogledov: 1527; Prenosov: 409
.pdf Celotno besedilo (86,11 KB)

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