20.500.12556/DiRROS-13712
Content analysis of Advance Directives completed by patients with advanced cancer as part of an Advance Care Planning intervention : insights gained from the ACTION trial
Purpose. Writing an Advance Directive (AD) is often seen as a part of Advance Care Planning (ACP). ADs may include specific preferences regarding future care and treatment and information that provides a context for healthcare professionals and relatives in case they have to make decisions for the patient. The aim of this study was to get insight into the content of ADs as completed by patients with advanced cancer who participated in ACP conversations. Methods. A mixed methods study involving content analysis and descriptive statistics was used to describe the content of completed My Preferences forms, an AD used in the intervention arm of the ACTION trial, testing the effectiveness of the ACTION Respecting Choices ACP intervention. Results. In total, 33% of 442 patients who received the ACTION RC ACP intervention completed a My Preferences form. Document completion varied per country: 10.4% (United Kingdom), 20.6% (Denmark), 29.2% (Belgium), 41.7% (the Netherlands), 61.3% (Italy) and 63.9% (Slovenia). Content analysis showed that 'maintaining normal life' and 'experiencing meaningful relationships' were important for patients to live well. Fears and worries mainly concerned disease progression, pain or becoming dependent. Patients hoped for prolongation of life and to be looked after by healthcare professionals. Most patients preferred to be resuscitated and 44% of the patients expressed maximizing comfort as their goal of future care. Most patients preferred 'home' as final place of care. Conclusions. My Preferences forms provide some insights into patients' perspectives and preferences. However, understanding the reasoning behind preferences requires conversations with patients.
advance care planning
psycho-oncology
medical oncology
ACTION study
cancer
end of life
dying persons
vnaprejšnje načrtovanje oskrbe
psihoonkologija
medicinska onkologija
raziskava ACTION
rak
zadnji dnevi življenja
umirajoči
true
false
true
Springer Nature
Angleški jezik
Ni določen
(c) The Author(s) 2019
Neznano
2021-02-15 10:45:48
2021-02-15 10:45:49
2022-08-19 03:36:14
0000-00-00 00:00:00
2019
0
Nemčija
0
Nasl. z nasl. zaslona;
Soavtorice iz Slovenije: A. Mimić, U. Lunder, B. Červ, A. Simonič, H. Kodba Čeh, P. Ozbič;
Opis vira z dne 12. 2. 2021;
str. 1513-1522
iss. 3
Vol. 28
Mar. 2020
0000-00-00
Zaloznikova
Objavljeno
NiDoloceno
0000-00-00
0000-00-00
0000-00-00
616-097
1433-7339
10.1007/s00520-019-04956-1
51449091
513740569
RAZ_Zwakman_Marieke_i2019.pdf
RAZ_Zwakman_Marieke_i2019.pdf
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83d3f256-17b6-11ed-b6b8-001a4af901a5
https://dirros.openscience.si/Dokument.php?lang=slv&id=17140
RAZ_Zwakman_Marieke_i2019.zip
RAZ_Zwakman_Marieke_i2019.zip
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https://dirros.openscience.si/Dokument.php?lang=slv&id=17141
https://link.springer.com/content/pdf/10.1007/s00520-019-04956-1.pdf
1
https://dirros.openscience.si/Dokument.php?lang=slv&id=16753
Univerzitetna klinika za pljučne bolezni in alergijo Golnik
0
0
0